Anonymous 

Review for Chiari Malformation

  • Age 18-34
  • Female
  • 125 lbs
  • 5' 3"
  • Scottsdale, AZ
27
Sep2017
  • Injury Status In Pain
  • Do you have syringomyelia No
  • Chronicity 18+ Months
  • Number of Surgeries None
  • How much did pain interfere with your day-to-day activities in the past week? All the time
  • How much did pain interfere with your enjoyment of life in the past week? All the time
  • What best describes your pain level on average in the past week? Horrible
  • Doctor/Care Giver Dr Jeffrey Greenfield
  • headaches Several times a week
  • Neck pain Sometimes
  • difficulty swallowing Sometimes
  • dizziness Several times a month
  • Numbness and tingling Not at all
  • bladder and bowel dysfunction Yes

Treatment Ratings

    Improved
    NSAIDs - Anti Inflammatory drugs, Rest, Supplements, Meditation, Opioids
    Not Improved
    Wait and See,

I went to numerous doctors and well known medical facilities for the past 15 years. I was misdiagnosed with Lupus. I was recently diagnosed with Ehlers - Danlos (genetic test and skin biopsy) and Chiari Malformation 1. I am scheduled for fusion surgery in October. I would like to read other patient's recovery and surgery stories.


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