Anonymous 

Review for Chiari Malformation

  • Age 18-34
  • Female
  • 130 lbs
  • 5' 4"
  • Longview Texas
06
Jul2017
  • Injury Status In Pain
  • Do you have syringomyelia Yes
  • Chronicity 18+ Months
  • Number of Surgeries 2
  • How much did pain interfere with your day-to-day activities in the past week? All the time
  • How much did pain interfere with your enjoyment of life in the past week? All the time
  • What best describes your pain level on average in the past week? Horrible
  • Doctor/Care Giver Dr Michael Rosner
  • headaches Several times a week
  • Neck pain All the time
  • difficulty swallowing All the time
  • dizziness Several times a month
  • Numbness and tingling All the time
  • bladder and bowel dysfunction Yes

Treatment Ratings

    Improved
    Opioids
    Not Improved
    Surgery with tonsil cauterization, Meditation, Rest, Acupuncture, Massage
    Worsened
    Surgery, Wait and See, Surgery with dural opening, NSAIDs - Anti Inflammatory drugs

My first surgery was a flop which caused massive scar tissue that wrapped around my brain stem. My syngromiela almost completely dissolved during second surgery and right tonsil was resected but the left tonsil was partially resected due to massive scar tissue. I also have POTS, nerve pain my pituitary gland was flat and empty and now none of my glands are functioning. The neurogenic bladder caused me to develop septic shock and I have adrenal insufficiencies. I suffer from aphasia, short term memory loss and some long term. I can not stand for more than about 5mins at a time. Degenerative Disc disease, Osteoarthritis, shnorel's nodes. I continue to suffer from balance issues and well and vision issues. I am sorry I can't recollect much more due to so much more issues I have going on. I suffer from a narrowed colon which I have not been yet tested for EDS.Ptsd affects my life. I have no quality of life.


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