Supplements for Chiari Malformation

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2.3out of 5
Worsened(3)
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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 160 lbs
    • 5' 7"
    • Lake Elsinore CA
    20
    Oct2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Don�t have one at the moment
    • headaches Several times a week
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Several times a week
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Rest, Wait and See, Surgery with dural opening
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Supplements, Meditation, Opioids
      Worsened

    I do not like the choice of �cured� given. There is no cure, only treatments.
    I have given up on trying to find anything that takes away the pain I have. I don�t want to be stuck on medications the rest of my life and have learned to live my life in constant pain.


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  • Anonymous Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 3"
    • Scottsdale, AZ
    27
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Dr Jeffrey Greenfield
    • headaches Several times a week
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling Not at all
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements, Meditation, Opioids
      Not Improved
      Wait and See,

    I went to numerous doctors and well known medical facilities for the past 15 years. I was misdiagnosed with Lupus. I was recently diagnosed with Ehlers - Danlos (genetic test and skin biopsy) and Chiari Malformation 1. I am scheduled for fusion surgery in October. I would like to read other patient's recovery and surgery stories.


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  • Stacy Chiari Malformation

    • Age 35-54
    • Female
    • 140 lbs
    • 5' 4"
    • Gladstone, MI
    18
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Daily
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Surgery with dural opening, Surgery with tonsil cauterization,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements
      Worsened
      Wait and See

    I still work fulltime 5hough both standing and sitting are difficult. I am waiting to be given a surgical date for Tethered Cord Release, which is a co-morbid to Chiari. Hopefully, it will end some of the other symptoms I have had for years.


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  • Jennifer Chiari Malformation

    • Age 35-54
    • Female
    • 200 lbs
    • 5' 2"
    • Tustin CA
    18
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 4+
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Excruciating
    • Doctor/Care Giver Dr.Christopher Duma
    • headaches Multiple times per day
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Surgery with dural opening,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Massage, Rest, Supplements, Opioids
      Worsened
      Wait and See

    I have had 2 posterior fossa decompression surgeries ,one with laminectomy, VP Shunt,surgery 6 shunt revision surgeries.


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  • Laura Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 2"
    • Fort collins, CO
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Seeing 2 different surgeonsv this month
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Acupuncture, Rest, Supplements,

    I was diagnosed a little less than a month ago, but I've had symptoms my whole life; however, they've been worsening the last few years. I learned to manage many symptoms because I had decided it was all psychsomatic since no doctor could figure it out. Acupuncture was the first thing to help me (I started at 23). Yoga, acupuncture, massage and chiro have kept me functional for this long. But I've had an increase of obvious neurological issues this last year and after they didn't improve, I was finally sent to a neurologist.


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 275 lbs
    • 5' 11"
    • brookfield, wi
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Several times a month
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Multiple times per day
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Almost Cured
      Massage, Rest
      Improved
      NSAIDs - Anti Inflammatory drugs, Surgery with dural opening, Opioids, Meditation, Surgery with tonsil cauterization,
      Not Improved
      Supplements, Wait and See

    I am a single mom to a 3 yr old, and TRY to work my full time job using FMLA weekly. I live with my parents due to needing help with my son/health. my primary doctor suggests I cut to part time or quit altogether. and file disability. i have chiari, syringomyelia, degenerative discs, 4 herniated discs, scoliosis, stenosis, fibromyalgia, and chronic fatigue. along with major depression and anxiety


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