Acupuncture for Chiari Malformation

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1.4out of 5
Worsened(5)
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Improved(12)
  • Anonymous Chiari Malformation

    • Age 18-34
    • Female
    • 132 lbs
    • 5' 3"
    • Helsinki, Finland
    08
    Jun2021
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Chronicity 18+ Months
    • headaches Multiple times per day
    • Neck pain Often
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction No

    Treatment Ratings

      Improved
      Not Improved
      Acupuncture, Rest, Supplements, Meditation
      Worsened
      Wait and See

    I was diagnosed with Chiari malformation when I was 7 years old. I have had chronic headaches my whole life, but during the past two years the pain has become unbearable. I cannot bend down, turn my head too much in any direction, sleep in a wrong position or with a bad pillow, sit up or stand up too quickly, pick up or pull anything heavy etc. without feeling excruciating pain. And even if I didn't do any of these things my head is still hurting all the time.
    I also have other symptoms that are not so bad, just annoying. I have extremely bad orientation and I'm always lost in a new neighborhood or even in a new apartment. During sex my fingers and toes turn numb almost every time.
    I've seen neurologists and neurosurgeons and they agree that I need surgery. But because of the health care system of my home country, I have been waiting for my surgery for half a year now, and I probably have to wait for several more months. The doctors and surgeons don't take me seriously or understand how much pain I experience. They think I have a tension headache or migraine that is the main reason for my pain, and they always prescribe me new drugs to treat that. Obviously none of the drugs have helped (amitriptyline, chlordiazepoxide, gabapentin) because I don't have migraine or a tension headache.


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  • Laura Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 2"
    • Fort collins, CO
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 4 - 6 Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Seeing 2 different surgeonsv this month
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Acupuncture, Rest, Supplements,

    I was diagnosed a little less than a month ago, but I've had symptoms my whole life; however, they've been worsening the last few years. I learned to manage many symptoms because I had decided it was all psychsomatic since no doctor could figure it out. Acupuncture was the first thing to help me (I started at 23). Yoga, acupuncture, massage and chiro have kept me functional for this long. But I've had an increase of obvious neurological issues this last year and after they didn't improve, I was finally sent to a neurologist.


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 215 lbs
    • 5' 6"
    • Buffalo, NY
    04
    Sep2017
    • Injury Status Cured
    • Do you have syringomyelia No
    • Chronicity 4 - 6 Months
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr. Paolo Bolognese
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Not at all
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Cured
      Surgery with tonsil cauterization, Surgery with tonsillectomy, Surgery with dural opening
      Improved
      Massage, Rest, Opioids,
      Not Improved
      Supplements, Acupuncture, NSAIDs - Anti Inflammatory drugs
      Worsened
      Wait and See

    I choose to say I am cured because I no longer radiologically have a chiari malformation. My cerebellar tonsils were cauterized and removed. I do still struggle with the effects of EDS. I am pleased with my surgery. I had no complications with either tethered cord surgery or with chiari decompression/craniocervical fusion. I would do the surgeries over again!


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  • TheLipkinLife on YouTube Chiari Malformation

    • Age 18-34
    • Female
    • 150 lbs
    • 5' 4"
    • Peoria, Arizona
    02
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 4 - 6 Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Raj M Singh and Harold Rekate
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing All the time
    • dizziness Multiple times per day
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes