Acupuncture for Chiari Malformation

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1.4out of 5
Worsened(5)
Not improved(22)
Improved(12)
  • Laura Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 2"
    • Fort collins, CO
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Seeing 2 different surgeonsv this month
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Acupuncture, Rest, Supplements,

    I was diagnosed a little less than a month ago, but I've had symptoms my whole life; however, they've been worsening the last few years. I learned to manage many symptoms because I had decided it was all psychsomatic since no doctor could figure it out. Acupuncture was the first thing to help me (I started at 23). Yoga, acupuncture, massage and chiro have kept me functional for this long. But I've had an increase of obvious neurological issues this last year and after they didn't improve, I was finally sent to a neurologist.


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 215 lbs
    • 5' 6"
    • Buffalo, NY
    04
    Sep2017
    • Injury Status Cured
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr. Paolo Bolognese
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Not at all
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Cured
      Surgery with tonsil cauterization, Surgery with tonsillectomy, Surgery with dural opening
      Improved
      Massage, Rest, Opioids,
      Not Improved
      Supplements, Acupuncture, NSAIDs - Anti Inflammatory drugs
      Worsened
      Wait and See

    I choose to say I am cured because I no longer radiologically have a chiari malformation. My cerebellar tonsils were cauterized and removed. I do still struggle with the effects of EDS. I am pleased with my surgery. I had no complications with either tethered cord surgery or with chiari decompression/craniocervical fusion. I would do the surgeries over again!


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  • TheLipkinLife on YouTube Chiari Malformation

    • Age 18-34
    • Female
    • 150 lbs
    • 5' 4"
    • Peoria, Arizona
    02
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Raj M Singh and Harold Rekate
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing All the time
    • dizziness Multiple times per day
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Not Improved
      NSAIDs - Anti Inflammatory drugs, Opioids, Meditation, Supplements, Rest, Acupuncture, Massage
      Worsened
      Wait and See, Surgery with dural opening,

    I also have hEDS, craniocervical instability, Narcolepsy, POTS, and other conditions. I advocate strongly for hEDS and Chiari 1 connection, since my original NS didn't look into it I now am worse and need to get fusion in my neck. Find out more on Facebook and YouTube, The Lipkin Life.


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  • Jaden Chiari Malformation

    • Age < 18
    • Male
    • 120 lbs
    • 5' 11"
    • Arizina
    24
    Aug2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver I have 7
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Not at all
    • dizziness Several times a week
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction No

    Treatment Ratings

      Improved
      Supplements
      Not Improved
      Rest, Meditation, Wait and See,
      Worsened
      NSAIDs - Anti Inflammatory drugs, Acupuncture, Surgery with dural opening

    Have not returned to school since surgery 2.5 years ago. Have no quality of life and am in constant pain. No local neurosurgeon - He moved and no one else locally will see me. I'm also struggling with Lyme disease, POTS, and autoimmune encephalitis


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  • Kelli Chiari Malformation

    • Age 35-54
    • Female
    • 170 lbs
    • 5' 9"
    • Gilbert, az
    24
    Aug2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 3
    • How much did pain interfere with your day-to-day activities in the past week? A little bit
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Mild
    • Doctor/Care Giver Dr Frasier Henderson
    • headaches Not at all
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Not at all
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Almost Cured
      Supplements
      Improved
      Wait and See, Meditation, Surgery without dural opening, Rest, Acupuncture, Massage,
      Not Improved
      Opioids, NSAIDs - Anti Inflammatory drugs

    I work out with a trainer/therapost 2 times a week. Emotional, nutritional, physical and financial healing must be done on top of surgery. Anti-inflammatory foods, high quality essential oils, whole food supplements, accupuncture, massage, fascial stretch therapy, fermented food, meditation, mindfulness all play a role in my relief. One can have 100 surgeries and not get well or heal unless they do tbeir part on the healing proccrss.


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  • Amy Chiari Malformation

    • Age 35-54
    • Female
    • 162 lbs
    • 5' 6"
    • Fort Smith, Arkansas
    24
    Aug2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Dr. Henderson, Dr. Capocelli, Dr. Hamilton, Dr. Tennant
    • headaches Multiple times per day
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Daily
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Rest, Meditation,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Acupuncture, Supplements
      Worsened
      Opioids, Wait and See