Surgery with tonsil cauterization for Chiari Malformation

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1.6out of 5
Worsened(5)
Not improved(4)
Improved(10)
Cured(1)
  • Stacy Chiari Malformation

    • Age 35-54
    • Female
    • 140 lbs
    • 5' 4"
    • Gladstone, MI
    18
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Daily
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Surgery with dural opening, Surgery with tonsil cauterization,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements
      Worsened
      Wait and See

    I still work fulltime 5hough both standing and sitting are difficult. I am waiting to be given a surgical date for Tethered Cord Release, which is a co-morbid to Chiari. Hopefully, it will end some of the other symptoms I have had for years.


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 275 lbs
    • 5' 11"
    • brookfield, wi
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Several times a month
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Multiple times per day
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Almost Cured
      Massage, Rest
      Improved
      NSAIDs - Anti Inflammatory drugs, Surgery with dural opening, Opioids, Meditation, Surgery with tonsil cauterization,
      Not Improved
      Supplements, Wait and See

    I am a single mom to a 3 yr old, and TRY to work my full time job using FMLA weekly. I live with my parents due to needing help with my son/health. my primary doctor suggests I cut to part time or quit altogether. and file disability. i have chiari, syringomyelia, degenerative discs, 4 herniated discs, scoliosis, stenosis, fibromyalgia, and chronic fatigue. along with major depression and anxiety


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 215 lbs
    • 5' 6"
    • Buffalo, NY
    04
    Sep2017
    • Injury Status Cured
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr. Paolo Bolognese
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Not at all
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Cured
      Surgery with tonsil cauterization, Surgery with tonsillectomy, Surgery with dural opening
      Improved
      Massage, Rest, Opioids,
      Not Improved
      Supplements, Acupuncture, NSAIDs - Anti Inflammatory drugs
      Worsened
      Wait and See

    I choose to say I am cured because I no longer radiologically have a chiari malformation. My cerebellar tonsils were cauterized and removed. I do still struggle with the effects of EDS. I am pleased with my surgery. I had no complications with either tethered cord surgery or with chiari decompression/craniocervical fusion. I would do the surgeries over again!


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  • Stella Chiari Malformation

    • Age 18-34
    • Female
    • 193 lbs
    • 5' 4"
    • Phoenix,az
    03
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Steven chang
    • headaches Multiple times per day
    • Neck pain All the time
    • difficulty swallowing All the time
    • dizziness Multiple times per day
    • Numbness and tingling All the time
    • bladder and bowel dysfunction No

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Opioids
      Worsened
      Rest, Supplements, Meditation, Surgery with dural opening, Surgery with tonsil cauterization,

    I wish I never had this surgery. It was ok for a little while but came back ten fold


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  • Madison Chiari Malformation

    • Age 18-34
    • Female
    • 135 lbs
    • 5' 3"
    • Indianapolis Indiana
    18
    Jul2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 0 - 6 Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr Aaron Rendel
    • headaches Daily
    • Neck pain Often
    • difficulty swallowing Not at all
    • dizziness Daily
    • Numbness and tingling Not at all
    • bladder and bowel dysfunction No

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Opioids
      Not Improved
      Acupuncture