Surgery with tonsillectomy for Chiari Malformation

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4.1out of 5
Not improved(4)
Improved(2)
Almost cured(2)
Cured(1)
  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 215 lbs
    • 5' 6"
    • Buffalo, NY
    04
    Sep2017
    • Injury Status Cured
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr. Paolo Bolognese
    • headaches Several times a month
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Not at all
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Cured
      Surgery with tonsil cauterization, Surgery with tonsillectomy, Surgery with dural opening
      Improved
      Massage, Rest, Opioids,
      Not Improved
      Supplements, Acupuncture, NSAIDs - Anti Inflammatory drugs
      Worsened
      Wait and See

    I choose to say I am cured because I no longer radiologically have a chiari malformation. My cerebellar tonsils were cauterized and removed. I do still struggle with the effects of EDS. I am pleased with my surgery. I had no complications with either tethered cord surgery or with chiari decompression/craniocervical fusion. I would do the surgeries over again!


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  • Iris Chiari Malformation

    • Age 35-54
    • Female
    • 180 lbs
    • 5' 6"
    • Warwick RI
    26
    Jul2017
    • Injury Status Recovering
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Klinger, RI hospital, Providence, RI
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Multiple times per day
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Meditation
      Not Improved
      Surgery with dural opening, Surgery with tonsillectomy

    Always tired, want to nap,...if I'm with family and trying to keep up with them, I feel older than dirt


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  • Senie Chiari Malformation

    • Age 35-54
    • Female
    • 168 lbs
    • 5' 7"
    • Pc al
    07
    Jul2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Horrible
    • Chronicity 18+ Months
    • headaches Several times a month
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Multiple times per day
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Opioids
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Surgery, Rest, Wait and See, Surgery with dural opening, Surgery with tonsillectomy

    It affects my daily life to the point if I do just about anything I'm in pain an get a migraine, dizziness or pass out. I rest mostly


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  • Lewis Chiari Malformation

    • Age 35-54
    • Male
    • 300 lbs
    • 5' 11"
    • NC
    06
    Jul2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 2
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Micheal Rosner
    • headaches Several times a week
    • Neck pain Often
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Surgery with tonsillectomy, Surgery with dural opening, Opioids, Meditation, Rest, Acupuncture, Massage, Surgery, Surgery with tonsil cauterization
      Not Improved
      Supplements, Wait and See

    I varies from minute, to minute. I do all i can depending on my pain level. Glad i had surgery since i feel much better than before.


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 125 lbs
    • 5' 3"
    • Morganton Nc
    16
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Chronicity 6-18 Months
    • headaches Several times a week
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction No

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Rest
      Not Improved
      Massage, Opioids, Wait and See, Surgery with dural opening, Surgery with tonsillectomy

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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 215 lbs
    • 5' 4"
    • South Dakota
    23
    Aug2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Chronicity 0 - 6 Months
    • headaches Several times a week
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Sometimes
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements, Opioids, Surgery with tonsillectomy,
      Not Improved
      Meditation, Wait and See

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  • Bobbie Chiari Malformation

    • Age 35-54
    • Female
    • 150 lbs
    • 4' 8"
    • laurel md
    23
    Aug2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? A little bit
    • What best describes your pain level on average in the past week? Mild
    • Doctor/Care Giver dr sancure
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Several times a week
    • Numbness and tingling All the time
    • bladder and bowel dysfunction No

    Treatment Ratings

      Not Improved
      Rest, Supplements, Surgery with tonsillectomy