Meditation for Chiari Malformation

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1.6out of 5
Worsened(6)
Not improved(49)
Improved(27)
Almost cured(1)
  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 160 lbs
    • 5' 7"
    • Lake Elsinore CA
    20
    Oct2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Don�t have one at the moment
    • headaches Several times a week
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Several times a week
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Rest, Wait and See, Surgery with dural opening
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Supplements, Meditation, Opioids
      Worsened

    I do not like the choice of �cured� given. There is no cure, only treatments.
    I have given up on trying to find anything that takes away the pain I have. I don�t want to be stuck on medications the rest of my life and have learned to live my life in constant pain.


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  • Anonymous Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 3"
    • Scottsdale, AZ
    27
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Dr Jeffrey Greenfield
    • headaches Several times a week
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling Not at all
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements, Meditation, Opioids
      Not Improved
      Wait and See,

    I went to numerous doctors and well known medical facilities for the past 15 years. I was misdiagnosed with Lupus. I was recently diagnosed with Ehlers - Danlos (genetic test and skin biopsy) and Chiari Malformation 1. I am scheduled for fusion surgery in October. I would like to read other patient's recovery and surgery stories.


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  • Dee Chiari Malformation

    • Age 35-54
    • Female
    • 188 lbs
    • 5' 0"
    • Michigan
    16
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Chronicity 18+ Months
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Not Improved
      NSAIDs - Anti Inflammatory drugs, Massage, Rest, Meditation, Wait and See
      Worsened
      Opioids,

    It has greatly reduced my quality and enjoyment of life..
    Being in constant pain and hurting in so many places vision disturbances, balance issues, dizzy spells... THEN to have so many DR's treat you like you're lying because THEY ARE UNAWARE OF CHIARI is so deeply frustrating .


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  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 275 lbs
    • 5' 11"
    • brookfield, wi
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Several times a month
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Multiple times per day
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Almost Cured
      Massage, Rest
      Improved
      NSAIDs - Anti Inflammatory drugs, Surgery with dural opening, Opioids, Meditation, Surgery with tonsil cauterization,
      Not Improved
      Supplements, Wait and See

    I am a single mom to a 3 yr old, and TRY to work my full time job using FMLA weekly. I live with my parents due to needing help with my son/health. my primary doctor suggests I cut to part time or quit altogether. and file disability. i have chiari, syringomyelia, degenerative discs, 4 herniated discs, scoliosis, stenosis, fibromyalgia, and chronic fatigue. along with major depression and anxiety


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  • Maria Chiari Malformation

    • Age 35-54
    • Female
    • 165 lbs
    • 5' 2"
    • Collinsville, IL
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver David Yablonsky
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Daily
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      NSAIDs - Anti Inflammatory drugs, Massage, Supplements, Opioids, Surgery with dural opening,
      Not Improved
      Meditation
      Worsened
      Rest, Wait and See

    If I do physical activity that raises my heart beat to a certain point, I am guaranteed a severe Chiari headache for at least 3 days. I wish I could find something to raise my activity level. Caffeine and ibuprofen are my best friends. Surgery is a better quality of life, not a cure.


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  • Ellen Chiari Malformation

    • Age 35-54
    • Female
    • 209 lbs
    • 5' 8"
    • Isleton California
    04
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 6-18 Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Dr Kaur
    • headaches Several times a month
    • Neck pain Often
    • difficulty swallowing Sometimes
    • dizziness Daily
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes

    Treatment Ratings

      Improved
      Rest, Supplements, Meditation
      Not Improved
      Wait and See
      Worsened

    Chiari is difficult to live with. I live on West coast and almost nothing for us or here.


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