Change condition
Chiari Malformation

Top Rated Treatments for Chiari Malformation

Based on reviews from people like you
  • All (1048)All
  • Surgeries / Invasive (163)Invasive
  • Medications (361)Med
  • Non Invasive (524)Non Invasive
MORE FILTERS
  • Ariana Chiari Malformation

    • Age < 18
    • Female
    • 135 lbs
    • 5' 6"
    • Sidney Ohio
    25
    Jun2018
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Cincinnati Children's Neurologist
    • headaches Multiple times per day
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Multiple times per day
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes
      Improved
      Rest
      Worsened
      Wait and See,

    I went to the neurosurgeon around this time last year and all he told me was that he couldn't do anything for at least another year and a half. He gave me no medicine or any options to help. I've been in constant pain for so long. Nothing helps. People don't believe that I'm in as much pain as I am so I just have to deal with it by myself. Chiari is awful.

    View All Ratings  
  • Anonymous Chiari Malformation

    • Age 35-54
    • Female
    • 160 lbs
    • 5' 7"
    • Lake Elsinore CA
    20
    Oct2017
    • Injury Status In Pain
    • Do you have syringomyelia Yes
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Somewhat
    • How much did pain interfere with your enjoyment of life in the past week? Somewhat
    • What best describes your pain level on average in the past week? Discomforting
    • Doctor/Care Giver Don�t have one at the moment
    • headaches Several times a week
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Several times a week
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes
      Improved
      Rest, Wait and See, Surgery with dural opening
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Supplements, Meditation, Opioids
      Worsened

    I do not like the choice of �cured� given. There is no cure, only treatments.
    I have given up on trying to find anything that takes away the pain I have. I don�t want to be stuck on medications the rest of my life and have learned to live my life in constant pain.

    View All Ratings  
  • Anonymous Chiari Malformation

    • Age 18-34
    • Female
    • 125 lbs
    • 5' 3"
    • Scottsdale, AZ
    27
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries None
    • How much did pain interfere with your day-to-day activities in the past week? All the time
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Horrible
    • Doctor/Care Giver Dr Jeffrey Greenfield
    • headaches Several times a week
    • Neck pain Sometimes
    • difficulty swallowing Sometimes
    • dizziness Several times a month
    • Numbness and tingling Not at all
    • bladder and bowel dysfunction Yes
      Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements, Meditation, Opioids
      Not Improved
      Wait and See,

    I went to numerous doctors and well known medical facilities for the past 15 years. I was misdiagnosed with Lupus. I was recently diagnosed with Ehlers - Danlos (genetic test and skin biopsy) and Chiari Malformation 1. I am scheduled for fusion surgery in October. I would like to read other patient's recovery and surgery stories.

    View All Ratings  
  • Stacy Chiari Malformation

    • Age 35-54
    • Female
    • 140 lbs
    • 5' 4"
    • Gladstone, MI
    18
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Doctor/Care Giver Dr. Dan Heffez
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Often
    • dizziness Daily
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes
      Improved
      Surgery with dural opening, Surgery with tonsil cauterization,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Rest, Supplements
      Worsened
      Wait and See

    I still work fulltime 5hough both standing and sitting are difficult. I am waiting to be given a surgical date for Tethered Cord Release, which is a co-morbid to Chiari. Hopefully, it will end some of the other symptoms I have had for years.

    View All Ratings  
  • Jennifer Chiari Malformation

    • Age 35-54
    • Female
    • 200 lbs
    • 5' 2"
    • Tustin CA
    18
    Sep2017
    • Injury Status Recovering
    • Do you have syringomyelia No
    • Chronicity 18+ Months
    • Number of Surgeries 4+
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? All the time
    • What best describes your pain level on average in the past week? Excruciating
    • Doctor/Care Giver Dr.Christopher Duma
    • headaches Multiple times per day
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling Often
    • bladder and bowel dysfunction Yes
      Improved
      Surgery with dural opening,
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Massage, Rest, Supplements, Opioids
      Worsened
      Wait and See

    I have had 2 posterior fossa decompression surgeries ,one with laminectomy, VP Shunt,surgery 6 shunt revision surgeries.

    View All Ratings  
  • Dee Chiari Malformation

    • Age 35-54
    • Female
    • 188 lbs
    • 5' 0"
    • Michigan
    16
    Sep2017
    • Injury Status In Pain
    • Do you have syringomyelia No
    • Number of Surgeries 1
    • How much did pain interfere with your day-to-day activities in the past week? Quite a bit
    • How much did pain interfere with your enjoyment of life in the past week? Quite a bit
    • What best describes your pain level on average in the past week? Distressing
    • Chronicity 18+ Months
    • headaches Daily
    • Neck pain All the time
    • difficulty swallowing Sometimes
    • dizziness Several times a week
    • Numbness and tingling All the time
    • bladder and bowel dysfunction Yes
      Not Improved
      NSAIDs - Anti Inflammatory drugs, Massage, Rest, Meditation, Wait and See